So it happened. I started to have some soreness with the left side, always the left side, of my groin and knee a few days before Halloween. It progressed to the point where I knew something was up because I hadn’t done anything physically to cause myself this much pain. I was also beginning to limp. The pain got steadily worse and I was getting worried. Neurologist confirmed I was going through a relapse and prescribed me some oral steroids. Those didn’t help and ended up at Lions Gate hospital for a 5-day intravenous steroid treatment. By this time I was having some serious nerve pain, it was random and it was interesting to see I couldn’t physically replicate the pain.
Everyone in the apartment knew when the pains came. My left quad
couldn’t bear my weight and I was using a brace and a cane at times.
I even saw a physiatrist
(rehab doc) who suggested the brace.
Diana, my physio, was not happy to see me back so quickly.
About 1 month later after going back to rehab/physio. I was able to ditch the brace + cane – yay! I was able to take some time off and luckily was able to work from home a good amount too – I feel very fortunate to be able to do that and I know how lucky I am.
Now it’s back to kicking this disease in the ass.
It was early 2013 when I noticed that my left hand seemed to be having trouble keeping up with my right while typing at work. I remember it was specifically my left pinky and ring fingers that were not in-sync. Around the same time, I also started to experience the same type of issue with my left leg. To me it felt as if my left leg wasn’t a ‘part’ of me some of the time. It wasn’t ‘listening’ to me and keeping in-sync with the rest of my body. When this first happened, I can recall walking to a friends house which was about a 15min walk. It felt as if my leg wasn’t going to continue and that I might have to drag it the rest of the way, but somehow I convinced it. These symptoms went away after a couple of months. Some more time went by and everything was fine. I even hauled firewood onto our deck with no issues, no problems.
A bit more time went by and the same symptoms came back but this time they were much stronger. It became harder to type, I was constantly hitting the caps-lock key without intending to. My left leg was in a world of its own, half of the time not ‘listening’ to me. I also had a couple new symptoms. First I felt like I lost most of my balance in my left leg and things like riding the bus became a whole new adventure. Another was my bladder. I had to pee a lot and when I did, look-out, I had about 5-10 minutes to find a toilet.
After being referred to a neurologist who recommended an MRI, I was diagnosed with Multiple Sclerosis in January 2014. Specifically I was diagnosed with “Relapsing-remitting MS” which is the most common form of MS. I had been going through what is known as a ‘relapse‘.
Some symptoms started to dissipate but others weren’t going away at all. I was waiting patiently, hopingpraying that everything would return to normal again, eventually. I started taking DMDs – Rebif (injections) and switched a couple months later to Tecfidera (oral). So far so good on those I guess but the symptoms still have not disappeared. They’re with me everyday now and I’ve now accepted that, I have to. Time to move on.
It’s all about preventing this disease from getting worse from here on out and taking the ‘next steps’ and part of that will be by blogging from time to time.
until next time…